Riley Hoult, two, from Leeds, was diagnosed with neuroblastoma in 2014 when he was just one year old. His mother Sophie is a single parent who has bravely fought side by side with Riley.
Riley was Hugs Childrens Cancer Charity’s first wish child and was given an iPad and vouchers that he could use while spending weeks at a time in hospital, often confined to one room without being able to leave. The iPad is also used as a distraction technique during painful treatments and scans.
A seemingly small gift has really made a difference to both Riley and Sophie.
Jenson Pashley, two, from Worthing, is undergoing treatment for stage 4, high risk neuroblastoma. His diagnosis took many months and his eye had started to bulge and drop down his face.
Jenson is being treated at Great Ormond street and has to spend weeks at a time away from his older brother. His mother and father take it in turns to look after him but this often means the family is separated for long periods.
Hugs Childrens Cancer Charity was was able to help the family to enjoy a special holiday together, away from the hospital and the stress, with just fun and laughter to be enjoyed.
Harvey Hext, eight, from Bristol, has down syndrome and was diagnosed with stage 4 neuroblastoma when he was four. His mother Sarah was sure something was wrong but it was seven visits to the hospital, two to A&E and a drive to another hospital before he was diagnosed.
By this time the cancer had reached Harvey’s bones.
Treatment for Harvey has unfortunately never been easy and the typical protocol has not been possible due to poor response. Even though he has had several types of treatment his neuroblastoma tumours have remained.
Last year he was diagnosed with a sarcoma, a new cancer which was likely caused by the treatment he received for neuroblastoma. He had to go through major surgery to remove the sarcoma and his cancer became stable.
Thanks to Hugs Childrens Cancer Charity, Harvey was able to make some unforgettable memories. He and his family were able to attend the Caudwell Butterfly Ball where they met a horde of celebrities including soul singer Lionel Ritchie and Sarah Ferguson.
In 2016, the hext family wre given the devestating news that Harveys Sarcoma had retured and there was no more treatment available. Harvey fought so very hard and gained his angel wings surrounded by his family. I personally will never forget this funny and cheeky boy, who alongside his brother bought so much happiness into this world.
Delilah, one, from Watford, is currently being treated in Great Ormond Street Children’s Hospital. She was just eight months old when she was diagnosed with stage 4 neuroblastoma.
A tumour of 11cm-7.7cm was found in her stomach and then travelled up through her diaphragm into the left hand side of her neck. She also had the disease in her bone marrow and bones.
She is very close to her older sister and is sadly separated from her for long periods of time whilst undergoing treatment.
Hugs Childrens Cancer Charity was able to help the family to have a wonderful holiday in Disneyland, Paris where they made memories they will never forget.
Delilah has now finished treatment and is awaiting her final scan results!
In Feb 2016 Hugs Childrens Cancer Charity gave me lots of tlc and emotional support when my daughter relapsed with Neuroblastoma. The lovely Elsbeth Hallam Nee Maslen-Jones was at the end of the phone to give me invaluable comfort, support and advice when I needed it …..and has remained a great friend to me ever since. Amazing charity that absolutely rocks!!!
In 2017 during Isabella’s 3rd journey with neuroblastoma, we were able to enjoy a wonderful week away from hospital visits thanks to Hugs Childrens Cancer Charity. We were treated to a week in Devon and Isabella was able to take part in some brilliant activities which really took her mind off her treatment and allowed her to just be a child for a week.
Hugs Childrens Cancer Charity thank you so very much for putting a massive smile on Isabellas face. You are just amazing
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